Check out the link below to a great post by Kimmiecakeskickslyme about the connection between Fibro and Lyme. And here are my thoughts on the matter:
Fibromyalgia was invented by pharmaceutical companies who needed a market for their drug Lyrica. I’m not just making this up. When I was in graduate school a psychiatrist explained this to us. When I worked in a major healthcare system in the US, patients who were diagnosed with Fibro were considered as psych cases. I think you bring up an important question, but another important question is “Is Lyme disease really Epstein-Barr, or is Lyme disease really a chain of events that creates an autoimmune disorder in the body”. I think this is an important question because getting a Lyme disease diagnosis and going to an LLMD is not necessary an indication that someone is going to get better. In fact, they are likely to get worse. And the worse they get the more they are told that they are getting worse because they have to endure the treatment in order to get better. In my mind a diagnosis of Lyme disease is not that much of a step up from fibromyalgia in regards to getting better. I believe the symptoms we all experience (which of course are very real and debilitating) are a result of a colossal failure of our bodies to be able to respond to multiple stressors, physical mental and spiritual. Many of us were Type A personalities before the illness began. So we are in a weakened state when we encounter pathogens via a tick bite, or something else. Perhaps we also experience severe mental and emotional stressors like loss or disillusionment. Perhaps we also have unresolved trauma from the past that is stored in our bodies as pain. It’s an an assault from all directions to the point where the organism (us) systematically shuts down. Then we travel our journey from doctor to doctor trying to find out what is wrong with us. We want someone to fix it so we can get back to work and parenting and care-taking and whatever else we do. Eventually we find our way to an LLMD and now our bodies are being assaulted again by multiple antibiotics, many of which are the strongest antibiotics used in medicine today. Think of this. An organism has a failing immune system and instead of trying to re-establish the immune system to allow the body to heal itself, we throw multiple pharmaceutical agents at it as if they were candy. I feel like you, that my position on this is controversial. It scares me a little even to post it here. There is so much emotional and physical angst related to this illness. There is also a lot of just pure junk science out there related to Lyme disease. And behind it all is this huge roar of anger about how we have been screwed by the medical system, or bodies, and the people who have abandoned us because they don’t believe our symptoms are real. I’m not going to wrap this up by saying I know what the answers are for anyone other than myself. For me, the road to health involves addressing the physical, mental and spiritual aspects of this illness and then creating an environment for the body to heal itself, which is what it’s designed to do. Thanks for taking the risk of bringing up a controversial topic.
This post is geared toward those with a Fibromyalgia diagnosis, but might be a good read and please share this information as I feel it could help people find answers and a path to a normal life.
I know this post is going to offend. Ok maybe REALLY offend. But with the recent great article posted by Envita, I think this topic needs some further dwelling and consideration. But readers, I am blogging with all the good intentions as I want nothing more than you all to get your lives back. Many of you are completely debilitated, and your lives have been destroyed.
I am hoping that you can all read this with an open mind.
This one really hits home to me since I was misdiagnosed with Fibromyalgia and CFS at the age of 21. I was an overachiever and had all the “trigger points”, IBS…
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